News + Events

UPCOMING ANNUAL FAMILY DAY - SATURDAY 4TH FEBRUARY 2017

AHCI — Wed, 11 Jan 2017 11:53:39 +0000

Looking forward to seeing all our families and children in the Clontarf Castle Hotel on 4th February at 2.30pm for our annual family meeting.

See you there!!

AHCI IS DELIGHTED TO ANNOUNCE ITS FIRST DONATION TO RESEARCH

AHCI — Fri, 11 Mar 2016 10:45:47 +0000

The AHCI is delighted to announce its participation in the funding of $125,000 for the second half of the research project “Molecular Physiology and Pharmacology of ATP1A3 Mutations in AHC” being carried out at Vanderbilt University School of Medicine under the direction of Dr. Kevin Ess and Northwestern University, Chicago under the direction of Dr. Alfred George. The funding was in part provided by the Alternating Hemiplegia of Childhood Foundation (AHCF) in the US to the amount of $120,000 and $5,000 by the AHCI.

Dr Ess stated, "The very generous donation by the AHCF and AHCI will enable us to determine mechanisms used by specific ATP1A3 mutations that cause AHC. Our experiential approach was designed to most quickly identify disease pathways as well as potential therapeutics that can help those afflicted with AHC.”

“This is where the research gets really exciting! Work is finally being done on potential drug treatments for our kids.” Said AHCF President Lynn Egan.

"We are delighted to be in a position to make our first donation to a research project that is actively looking for a treatment for our kids. This was one of the key reasons the AHCI was founded in the first place - to fund and drive research. We would also like to thank the AHCF and particulary Lynn Egan for allowing us to participate in this research project and we would like to wish both the teams in Vanderbilt and Northwestern all the very best with their research. Finally, we would like to thank those who made this donation possible, the parents, donors and fundraisers of the AHCI" Chairman AHCI Tom O'Brien

WHAT A GREAT FAMILY DAY!!

AHCI — Fri, 20 Nov 2015 15:26:42 +0000

A great day was had by all the families and kids who attended this year's family day in Clontarf Castle. There were face painters, balloon animals, chicken nuggets and chips and the kids had a good time too. Seriously though thanks to everyone who came along. A lot of information and stories were shared and the AHCI agreed to make two substantial donations to various research projects next year. Watch this space!!

2015 ANNUAL FAMILY DAY TAKING PLACE SATURDAY NOVEMBER 7th

AHCI — Tue, 06 Oct 2015 17:30:26 +0000

The AHCI's annual family day will take place in the Norman suite in the Clontarf Castle Hotel, in Clontarf Dublin 3 on Saturday November 7th from 2pm until 6pm. It should be a great chance for families and children to gather and share their stories and experiences form the previous year. We look forward to seeing you there!!

4th Symposia on ATP1A3 Takes Place in Washington DC

AHCI — Mon, 31 Aug 2015 15:57:02 +0000

A large group gathered for the 4th Symposia on ATP1A3 in Washington DC last weekend. Researchers from around the world gathered to share their findings and the progress they are making in their research into AHC. Detailed notes from the meeting can be provided upon request.

Approx. €3,000 Raised from Clontarf Half Marathon!!

AHCI — Mon, 31 Aug 2015 10:35:06 +0000

Well done to everyone who participated in the Clontarf Half marathon. While the money is still being counted, it looks like approx. €3k will have been raised for the AHCI. Thank you to everyone who donated so generously!!

Family Event 2015

AHCI — Thu, 02 Jul 2015 09:30:57 +0000

Details of this year's AHCI Family Event will be posted soon. Keep watching!

BIG RUN!!!

AHCI — Thu, 02 Jul 2015 09:20:45 +0000

Best of luck to all those who are running on behalf of the AHCI this weekend. It looks like you'll have the weather for it!!

The Program for the 4TH ATP1A3 Symposium in Washington DC has been Published

AHCI — Thu, 02 Jul 2015 09:14:25 +0000

The annual symposium on AHC is being held in Washington DC from the 27th to 29th of August. It will be interesting to learn what progress is being made into the understanding of the condition and most importantly what possible treatments are being explored. Tom O'Brien, Chairman of the AHCI will attend on behalf of members and report back with a detailed report. Check out the program at http://bit.ly/1GZiTvd

Some upcoming AHC related events.

AHCI — Fri, 02 Aug 2013 10:28:54 +0000

- The 'Third Symposium ATP1A3 in Disease' conference in Amsterdam on the 29th - 30th August, 2014.

- AHCI Family Day - 4th October 2014 in Clontarf Castle, Dublin 3.