Wednesday
Jan112017

UPCOMING ANNUAL FAMILY DAY - SATURDAY 4TH FEBRUARY 2017

Looking forward to seeing all our families and children in the Clontarf Castle Hotel on 4th February at 2.30pm for our annual family meeting.

See you there!!

Friday
Mar112016

AHCI IS DELIGHTED TO ANNOUNCE ITS FIRST DONATION TO RESEARCH

 

 The AHCI is delighted to announce its participation in the funding of $125,000 for the second half of the research project “Molecular Physiology and Pharmacology of ATP1A3 Mutations in AHC” being carried out at Vanderbilt University School of Medicine under the direction of Dr. Kevin Ess and Northwestern University, Chicago under the direction of Dr. Alfred George.    The funding was in part provided by the Alternating Hemiplegia of Childhood Foundation (AHCF) in the US to the amount of $120,000 and $5,000 by the AHCI.  

Dr Ess stated, "The very generous donation by the AHCF and AHCI will enable us to determine mechanisms used by specific ATP1A3 mutations that cause AHC. Our experiential approach was designed to most quickly identify disease pathways as well as potential therapeutics that can help those afflicted with AHC.”

 “This is where the research gets really exciting!  Work is finally being done on potential drug treatments for our kids.” Said AHCF President Lynn Egan.

"We are delighted to be in a position to make our first donation to a research project that is actively looking for a treatment for our kids. This was one of the key reasons the AHCI was founded in the first place - to fund and drive research.  We would also like to thank the AHCF and particulary Lynn Egan for allowing us to participate in this research project and we would like to wish both the teams in Vanderbilt and Northwestern all the very best with their research.  Finally, we would like to thank those who made this donation possible, the parents, donors and fundraisers of the AHCI" Chairman AHCI Tom O'Brien

 

Friday
Nov202015

WHAT A GREAT FAMILY DAY!!

A great day was had by all the families and kids who attended this year's family day in Clontarf Castle.  There were face painters, balloon animals, chicken nuggets and chips and the kids had a good time too.  Seriously though thanks to everyone who came along. A lot of information and stories were shared and the AHCI agreed to make two substantial donations to various research projects next year.  Watch this space!!



Tuesday
Oct062015

2015 ANNUAL FAMILY DAY TAKING PLACE SATURDAY NOVEMBER 7th

The AHCI's annual family day will take place in the Norman suite in the Clontarf Castle Hotel, in Clontarf Dublin 3 on Saturday November 7th from 2pm until 6pm.  It should be a great chance for families and children to gather and share their stories and experiences form the previous year.  We look forward to seeing you there!! 

Monday
Aug312015

4th Symposia on ATP1A3 Takes Place in Washington DC

A large group gathered for the 4th Symposia on ATP1A3 in Washington DC last weekend.  Researchers from around the world gathered to share their findings and the progress they are making in their research into AHC.  Detailed notes from the meeting can be provided upon request.